Tag Archives: sickle cell disease

Healing the Gerson Way

October 17, 2011


I wonder what it might feel like to have all the vitamins and minerals I’m supposed to have inside my body, there all the time. What if I had a nutritiously sound mind and body? Would it make me think differently? Would that make me feel differently? Would I feel better? More active and energetic? […]

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Prepare for the worst, hope for the best or affect the outcome?

June 28, 2011


I choose to affect the outcome. On any given day I have no idea how much what I do here at Madison Holland Foundation will affect the outcome for sickle cell patients and their families, but I promise to keep trying. I’d rather do something than do nothing. I’d rather know than not know. Information […]

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Why aren’t there more sickle cell groups?

June 21, 2011


     There are support groups for almost everything. There are support groups for cancer patients, for the bereaved and those living with every kind chronic life long illnesses. No one has to deal with any unfortunate circumstance alone. If you want help, look for it and are willing to accept it, you can find it. […]

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She made it through two years of treatment for a cure… Grateful!

June 10, 2011


I am happy I found this video. This is what I want for Madison and every child with this disease. Two years is a long time and the journey was not an easy one but, seeing this beautiful young lady now, lets me know every test, probe, chemotherapy, all the time away from school, friends […]

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There’s nothing easy about Madison

June 4, 2011


I don’t know where I got the idea kids would be easy, but that’s what I expected. I expected… well, I take that back, I asked God for a happy healthy baby. At the time, that’s all I wanted. I forgot to ask him for a smart, out going, obedient, agile, athletic child who can […]

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SCDAA – Sickle Cell Parent Support Group is having a meeting

May 28, 2011

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Thursday, June 2, 2011 at 6:30 pm Learn the benefits of Music Therapy for your Child with Blythe Philp, MT-BC, CCLS (Board Certified Music Therapist for Acute Care Units at CHM)  All are welcome. You don’t have to be a sickle cell patient or have a child who has sickle cell disease to attend this […]

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“Please take responsibility for the energy you bring into this room.” Oprah Winfrey

May 26, 2011


Yesterday I watched the last taped Oprah Winfrey show. As usual she inspired me, made me cry and made me laugh. Before the show came on, that morning I had begun to question ‘who’ I am and better still, ‘whose’ I am. I asked myself, as I had on many occasions, “Who am I to […]

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12 Reasons to support sickle cell research and advocacy

May 16, 2011


12 Reasons to support sickle cell research & advocacy 12. According to the Centers for Disease Control there are over 70,000 people living with sickle cell in the US 11. Three times as many people are affected by it. Each time a parent has to leave work to care for a child, everyone at his […]

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