Tag Archives: post a week

The First 1000!

March 16, 2011

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It feels good!!! When I started out, I have to admit I was a bit timid. It took me two weeks to make the announcement to my family and friends that I had started to blog…again. Over this three month period, I have gone through three transformations: Initially, it was all about Madi and sickle cell […]

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The reality is….

March 7, 2011

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Most patients experience some pain everyday. A lot of people don’t believe this. Patients spend a lot of time trying to convince those around them that they require a different kind of patience and a different kind of compassion. They’re not trying to blow you off or flake out on you. This is part of […]

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Did you forget about me?

February 18, 2011

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Do you know over 800,000 children are born with sickle cell anemia each year? Some require receiving a blood transfusion every three weeks. Can you imagine that? We are trying to do as much as we can to change the outcome. We need your support. You can donate time, money, or even share information about […]

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Who’s your greatest hero?

February 13, 2011

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The hero I most admire is Alexander Fleming because he discovered penicillin. Penicillin is given to babies diagnosed with sickle cell disease at birth, from birth until the age of six. It saves their lives by protecting them from infection. Sickle cell disease weakens your immune system. Fleming is at the top of my list […]

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The worst teacher I’ve ever had…

February 11, 2011

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I don’t know if it’s fair to say he was the worst teacher, but I couldn’t understand a word he said. He talked to our seventh grade algebra class while standing on top of his desk and in the window sill. He was constantly moving. To me, this was distracting. It made me feel like he was […]

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If I had a reality show….

February 10, 2011

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If I had a reality show, I’d follow an adult sickle cell disease patient around. The reality is, living with sickle cell disease is very difficult. It can take away your independence and your ability to live a full productive life. Numerous hospital stays sometimes cost these patients their jobs. Being unable to care for themselves because […]

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