Tag Archives: funding

Sickle cell and the best day ever!

June 1, 2011

4 Comments

At 5:00 am I woke up naturally. No alarm clock needed. It was the 23rd of May and all was right with the world. I knew because before I opened my eyes, I took an assessment of my body and there was no pain or even the slightest discomfort. So, I start to question my […]

Continue reading...

Bowling FUNdraiser!!!

April 5, 2011

1 Comment

Bowl for a cure. Bowl for Madison. Come out to Thunderbowl Lanes in Allen Park on Friday, April 15 5 p.m. until 8 p.m. and join me and Madison for some bowling and FUNdraising. This is the Madison Holland Foundation’s inaugural fundraiser, and we can’t wait to start raising money for a cure for sickle […]

Continue reading...

My Purpose….

March 11, 2011

1 Comment

I am not an expert in the area of medicine. I write on the Madison Holland Foundation blog from a personal perspective, this is what I know and have seen either here at home, in the doctor’s office or on the web. I do this to get attention for sickle cell and to hopefully get […]

Continue reading...

Blood Transfusions

February 24, 2011

0 Comments

Blood Sack The risk of iron over load with blood transfusions has been addressed with the oral medication Exjade (deferasirox). The problem with medication is it usually has side effects that cause you to need another medication. The only way to break the cycle and dependancy on these medications is to stop taking them. And, […]

Continue reading...

A lifetime of pain and organ failure

February 23, 2011

1 Comment

When there’s nothing you can do to soothe a child screaming in pain, your heart aches and you feel powerless. Imagine your childs hand looking like this. He’s in pain. Mom feels helpless. She knows exactly where it hurts, but no amount of kisses can make it better. What should you do? She cries because […]

Continue reading...

Do you want to live forever?

February 8, 2011

0 Comments

Do you want to live forever? I do. I’d like to see how the world changes, what technology does to help us, what discoveries are made and what diseases are cured. I imagine living to see slaves freed or surviving the holocaust is an extraordinary experience most of us can’t even imagine. I realized this […]

Continue reading...

There will be Angels!

January 15, 2011

0 Comments

Sickle cell disease is not easy. And, it’s not easy to convince people who aren’t affected by the disease to care about those who are. So, when he said those words, “There will be angels,” it made me feel like I was in church. I had this warm tingly feeling over my body. I wanted […]

Continue reading...