Tag Archives: family

Prepare for the worst, hope for the best or affect the outcome?

June 28, 2011


I choose to affect the outcome. On any given day I have no idea how much what I do here at Madison Holland Foundation will affect the outcome for sickle cell patients and their families, but I promise to keep trying. I’d rather do something than do nothing. I’d rather know than not know. Information […]

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Why aren’t there more sickle cell groups?

June 21, 2011


     There are support groups for almost everything. There are support groups for cancer patients, for the bereaved and those living with every kind chronic life long illnesses. No one has to deal with any unfortunate circumstance alone. If you want help, look for it and are willing to accept it, you can find it. […]

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She made it through two years of treatment for a cure… Grateful!

June 10, 2011


I am happy I found this video. This is what I want for Madison and every child with this disease. Two years is a long time and the journey was not an easy one but, seeing this beautiful young lady now, lets me know every test, probe, chemotherapy, all the time away from school, friends […]

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There’s nothing easy about Madison

June 4, 2011


I don’t know where I got the idea kids would be easy, but that’s what I expected. I expected… well, I take that back, I asked God for a happy healthy baby. At the time, that’s all I wanted. I forgot to ask him for a smart, out going, obedient, agile, athletic child who can […]

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Sickle cell and the best day ever!

June 1, 2011


At 5:00 am I woke up naturally. No alarm clock needed. It was the 23rd of May and all was right with the world. I knew because before I opened my eyes, I took an assessment of my body and there was no pain or even the slightest discomfort. So, I start to question my […]

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Sickle cell around the world: A parent’s struggle

April 26, 2011


Any parent will tell you that their number one priority is to protect their children from harm.  But what if you could not protect your child? What if all you could do is watch as your child experiences intense pain? Birth screenings has somewhat prepared American parents for what is to come if the screening […]

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Pain changes your perspective

April 20, 2011

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If you wake up every morning pain-free, it’s easy to take that for granted. Having never experienced a pain problem that kept you from doing what you love to do or a pain problem that skews your perspective, its easy to underestimate it. It’s easy to sit back and judge those who experience that sort […]

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Fund Raising Success!

April 17, 2011


The girls had a great time bowling! We met our fund raising goal and everyone had a good time. Thanks to everyone who came out and a special thanks to everyone who sent in a donation. While we certainly appreciate your donation, we missed your presence. It was a pleasure meeting every one.  Madi had a […]

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