June 4, 2011

4 Comments

There’s nothing easy about Madison

I don’t know where I got the idea kids would be easy, but that’s what I expected. I expected… well, I take that back, I asked God for a happy healthy baby. At the time, that’s all I wanted. I forgot to ask him for a smart, out going, obedient, agile, athletic child who can […]

Continue reading...

June 1, 2011

4 Comments

Sickle cell and the best day ever!

At 5:00 am I woke up naturally. No alarm clock needed. It was the 23rd of May and all was right with the world. I knew because before I opened my eyes, I took an assessment of my body and there was no pain or even the slightest discomfort. So, I start to question my […]

Continue reading...

May 28, 2011

1 Comment

SCDAA – Sickle Cell Parent Support Group is having a meeting

Thursday, June 2, 2011 at 6:30 pm Learn the benefits of Music Therapy for your Child with Blythe Philp, MT-BC, CCLS (Board Certified Music Therapist for Acute Care Units at CHM)  All are welcome. You don’t have to be a sickle cell patient or have a child who has sickle cell disease to attend this […]

Continue reading...

May 26, 2011

3 Comments

“Please take responsibility for the energy you bring into this room.” Oprah Winfrey

Yesterday I watched the last taped Oprah Winfrey show. As usual she inspired me, made me cry and made me laugh. Before the show came on, that morning I had begun to question ‘who’ I am and better still, ‘whose’ I am. I asked myself, as I had on many occasions, “Who am I to […]

Continue reading...

May 24, 2011

4 Comments

Sickle cell fact sheet for student athletes

It’s important to know if your student athlete has sickle cell trait and it’s even more important the staff at your child’s school knows what to look for and how to react in case of emergency. Please take a look at this sickle cell fact sheet and print it out to share with your child’s […]

Continue reading...

May 19, 2011

2 Comments

One Good Thing

When I go out to a networking event and get even one good thing, one good piece of information, meet one great person, give one person news they can use or help one person with a project, I am very happy and grateful. Last night I went to Young Non-profit Professionals Network’s Peer learning circles […]

Continue reading...

May 16, 2011

0 Comments

12 Reasons to support sickle cell research and advocacy

12 Reasons to support sickle cell research & advocacy 12. According to the Centers for Disease Control there are over 70,000 people living with sickle cell in the US 11. Three times as many people are affected by it. Each time a parent has to leave work to care for a child, everyone at his […]

Continue reading...

May 7, 2011

8 Comments

Emergency departments response to Sickle cell patients

Clinician attitudes toward patients are associated with variability in the quality of heath care…Negative attitudes toward adults with sickle cell disease have been identified as an important barrier to the receipt of appropriate pain management for this patient population. Carlton Haywood, Jr PhD et al. A video-intervention to improve clinician attitudes toward patients with sickle cell disease: […]

Continue reading...