Sickle cell around the world: A parent’s struggle

Any parent will tell you that their number one priority is to protect their children from harm.  But what if you could not protect your child? What if all you could do is watch as your child experiences intense pain? Birth screenings has somewhat prepared American parents for what is to come if the screening finds a positive result. These parents in India were surprised when the local physician told them their child has sickle cell.

Parents of a child with sickle cell disease struggle watching their child’s pain on a daily basis. Children with sickle cell anemia have to deal with things way beyond their years, especially pain. As a parent how do you explain to your child what is going on with their body?

Rena understands the struggle and uncertainty these parents go through. Every three weeks Madison receives a blood transfusion. Rena admits that sometimes it’s harder for her then Madison, especially when she has to watch her daughter get poked with needles.

For parents of children with sickle cell disease, there is nothing more frustrating and frightening than not being able to protect your child from pain. But there is help. The following websites are just a few that answer questions and offer support and guidance for parents:

• North Caroline Sickle Cell Syndrome Program
• KidsHealth from Nemours
• Circle of Moms

Are you the parent of a child with sickle cell disease? Join the discussion and share your story here.

Katherine Martin, Author